It’s midnight on day 10 into day 11 and I’m in the high dependency unit at the Royal Melbourne after a torrid 24 hours of horrendous bone pain, chills and then fevers tonight which landed me here. Hourly obs and they’ve given me antibiotics but sheesh I feel ill – chills, fever and the bone ache is like nothing I’ve ever experienced. Will update tomorrow but on the bright side I think the T-cells are definitely working! I’m being looked after really well and will be transferred over to the Peter Mac in the morning. I know I needed a bit of drama to make this more interesting but could do without this. ouch!

Need a little CRS to kill off those bad boys
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I know this is hard to go through, but this is good news, the cells are fighting the cancer! You’ve got this, you are strong and courageous, and you will get through this! I am sending you love and healing energy!
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After my ‘addicted’ comment the other day, this is not what I wanted to read. I’m thinking of you all the time and whilst I appreciate the cells are fighting the cancer, bone pain sounds horrific. Conversely, you may have experienced nothing and be now really stressing that things weren’t working.
Pleased you’re being looked after well. So so sorry you have to go through this. I’m praying for a more positive, less painful post tomorrow. Sending much love xxx
We northerners are strong, you have got it in you to get it out of you. An hour at a time xxx
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Oh you poor girl Deb. Sending love and prayers xxx
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As my kids would say XoXo! Thinking of you often!
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Not a good experience. But not altogether unexpected nonetheless. You are tracking my experience in January. In at midnight to Royal Melbourne then across to Peter Mac and wait until they would declare official CRS! Although it is 9 months ago for me; reading your blog reads as though it was my timeline just yesterday. I am due for my 9 month review so hopefully will maintain my “no discernible disease”.
All the best,
Peter
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Hi Peter – just checking back in on my blog and was wondering how you’re going? Hope you’re very well indeed x
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Glad you’re getting the necessary response Deb despite it all. Wishing you a quick ride and wonderful care through this phase.
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Sending virtual hugs, Deb, thinking of you as always. 💜
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Hope you’re doing better today, Deb. Thinking of you all the time xxx
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Thanks Sam yes so much better! Crazy times x
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