Well I asked, practically begged Professor Gribben if the truth be told, to give me permission to take the children skiing in the Alps last week, their last in Europe with me prior to my 4th cycle of treatment. He said, at this stage he couldn’t say no to me, and what a week we had in beautiful Courchevel. It was perfect and all I had to do was remember to put a pill box in my pocket before I went off skiing for the day. The fatigue has finally gone and all the fresh air did me a tremendous amount of good. Who would have thought I could be having such serious treatment on the top of a mountain? I hope this helps others who fear entering clinical trials…I have not felt this well for years. It’s saying something when you have enough energy to wear a 9 year old boy out (see hilarious photo below)
Tuesday was my 4th cycle of obinutuzimab and I was dreading it, particularly given how low I felt after the 3rd cycle but also because I am getting a bit over it all! I suppose the better I’m feeling the more I’m starting to resent the fact that my life is on hold. I know I’m incredibly fortunate and I couldn’t be more grateful to be on this trial but I’ve now been here for 6 months and just want to get home. It’s a funny rollercoaster of emotions having treatment. I’m well enough now to just focus on getting back to Melbourne, my family, friends and work. The day was long with a few hiccups as I’ve lost my trial nurse Sam (so sad!) and my bloodwork was identical to last month. It’s all a sign that I’m having a good response to the treatment. I’ll know more when I see the good Professor next week after an MRI scan (have managed to switch it from a CT) to see if there are any enlarged lymph nodes left where we can’t feel them. I’m hopeful that there aren’t.
I kissed my family goodbye yesterday and they’ve just landed back in Melbourne. It’s time for the children to go back to school and I’m very thankful for the 9 weeks I’ve had with them here – something very positive after all the upheaval. I’m hoping I might be able to get home immediately after the next cycle of treatment at the end of Feb to break up the gap for them, I don’t think we could cope with another long separation, but I will have to run that past the team at Barts – the 6th and final infusion is at the end of March so I need to be back here and well for that. Then the monthly trips begin.