I hadn’t noticed it until this afternoon but now I look at the photo from yesterday I must have been feeling it on my walk yesterday as I only wear gloves in the depths of winter or up at Mt Buller when the children and I go skiing but I’m running cold. Very cold and that’s not normal for me. I normally can’t wear anything to bed and sleep with just a sheet, I have been known to have the window open even on the coldest of nights (something I attribute to growing up in the north of England). But now I’m cold and I’m so cold that my right hand feels like I’ve got frostbite so I’m wearing my leather gloves inside (thanks to my 13 year old son Marlowe who bought these for me with his own money). I also put a photo above of a key ring Natasha asked my 16 year old Cameron to order for her from England for my birthday from Etsy. I’m wearing thermals, a fleeced sweatshirt and ski fleece on top – I am seriously cold but not shivering and my toe on my left foot decided to start tingling an hour ago but that’s now stopped thankfully. My temperature is still 36.3 so there’s no need to head back to hospital just yet.
I’m excited because at least it means something is happening – I am feeling better than I have in a long time – the chemo last week must have done a hell of a job on whatever little disease I had left in my bone marrow and now hopefully I’m getting a little bit of manageable Cytokine Release Syndrome – a little bit wouldn’t be too bad – here are a couple of papers on what would happen if I get too much:
I don’t think I need to call in to the hospital just yet but it means I need to keep an eye on things – and perhaps the 7km walk I did today around the gardens after the 5km one yesterday was pushing things a bit – I just feel so well it’s invigorating. My patient friend Lynn who has kept a watchful eye on me from her home in Hawaii has warned me to slow down and rest and she’s right – this isn’t the time to do too much. With that in mind I’m going to start getting these posts proofed before I post just in case I’m not aware I’m speaking gibberish (once again some might say I often do).
My hospital bag is packed and by the front door and I’m organised if we need to go quickly. I’ve done all my neuro tests and I’m still fine and Nicholas thinks it’s funny to include questions such as who was the lead guitarist in Led Zeppelin. In the meantime I’m going to have a rest and watch the rest of my Octopus Teacher on Netflix which is simply stunning.